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  • The Rare Disease Gazette #20 - Special Edition

    Series Book 20 - The Rare Disease Gazette
    The journal Science (American Association for the Advancement of Science) in collaboration with Fondation Ipsen delivers international science webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases. "The Rare Disease Gazette" is a magazine that broadcasts these discussions. In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection ... Read more

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  • Uncovering Rare Disease. Volume 3

    including a Conversation with Robert M. Califf, M.D., Commissioner of Food and Drugs; Head of the U.S. Food and Drug Administration

    Series Book 3 - The Rare Disease Gazette
    The journal Science (American Association for the Advancement of Science) in collaboration with Fondation Ipsen delivers international science webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases. The Rare Disease Gazette is a magazine that broadcasts these discussions. In this edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between ... Read more

    Free

  • Uncovering Rare Disease. Volume 4

    Series Book 4 - The Rare Disease Gazette
    The journal Science (American Association for the Advancement of Science) in collaboration with Fondation Ipsen delivers international science webinars for the general public. In 2024, these webinars focused on challenges in rare diseases. The Rare Disease Gazette is a magazine that broadcasts these discussions. ... Read more

    Free

  • The Rare Disease Gazette #19

    Taking care of caregivers

    Series Book 19 - The Rare Disease Gazette
    The journal Science (American Association for the Advancement of Science) in collaboration with Fondation Ipsen delivers international science webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases. The Rare Disease Gazette is a magazine that broadcasts these discussions. In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: ... Read more

    Free

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